I am saying that I have to let her know because she will end up finding out regardless through the EOB document on from our insurance. Here is what I have so far (not including the parentheses, theyre for added context):
Mom, I want to talk to you about something. It's serious, and I feel like I should tell you rather than let you find out, I owe you that much.
As you know, I do not want children. I've known as much since I was 12. And now that I'm 18, I'm able to take my health into my own hands.
I know that so far, I haven't done what you agree with (I went and got vaccinated for COVID), but in the end, I think we came to and understanding. I hope we can do the same thing with this.
I sent you a lengthy text in March of 2021 (About twice as long as this text), explaining what I planned on doing as an adult, and that I would start to pursue it when I turned 18. I'm telling you this so that you can see, this isn't a spur of the moment thing. I have carefully though this through, and know for sure what I want.
I went to my consultation with the Urologist on Friday, I felt bad for lying and telling you I went shopping (I had told her i was just going into town to shop and liok around). I had explained to him what I want, and why. He was respectful of my opinions, stated some concerns he had, especially as a parent, to which I let him know that I understood.
I told him the truth. That I don't think I could lead my happiest life knowing that there is a chance I would have to raise children. I just can't do that. It's not for me, and more importantly it isn't me. I'm not cut out to be a parent.
And he understood, we proceeded with the consultation and scheduled a date to have the procedure done. I needed to have blood work done to check my testosterone levels and a few other things, so I did that immediately after my appointment at labcorps (Place to get my lab work done that was nearby).
I just wanted to be honest with you and let you know myself, rather than hide it and let you find out. I hope you understand that this has nothing to do with you guys, and it's not me trying to go against what you guys believe. I just want to be happy and live my best life, and I know for a fact that I would not be able to without doing this. I am doing this for me, no one else.
We can talk about it in person if you'd like, but I am going to move forward with this. I have more to offer this world than continuing my bloodline. I think what I wrote it respectful and addresses some concerns. I live with her, so there is no avoiding it. I just don't want her to freak out. Is there anything that would be better left out, rewritten, or added?
Alright y'all... here's the final piece. It's 15 Google Docs pages, so it's a long one. If you don't want to read and are wondering what the takeaway is, it's this: Jenelle has so many different health "issues" that have popped up and disappeared over the last 10+ years, received diagnoses for some, has had tests done for most, and has ultimately ignored all of it. Sometimes she focuses on her esophagus. Sometimes it's her neck cracking. Sometimes it's her lungs. Sometimes it's her bloodwork. Sometimes it's her hemangiomas. Nowhere in any of the testing, medications, unofficial or official diagnoses is there a solution she's happy with. It never ends, and it never will. I'll eat a very tall sandwich if she ever announces (another) official diagnosis that explains all of her ailments (not necessarily one blanket one) and demonstrates treatment or lifestyle changes that she's making to try to make herself feel better.
January 2022 - Posts a TikTok video saying she’s been taking things easy lately and has lost her spark and motivation because of her health issues. She says, “I’ve recently been diagnosed with two tumors in my spine, and they recently found out that I also have a tumor in my neck, which hurts pretty bad. We don’t know what we’re doing about this yet, but I’ve just been in a lot of pain lately. My neck is just killing me.” She hashtags the video "syringomyelia," "hemangioma," and "spinetumor." In another video, she says these tumors are different than the cysts she’s previously mentioned and lists out what she has: cysts in her spine and head, two small tumors on her vertebrae and “thoratic” spine, another tumor at C3 in her neck, called hemangiomas. More on that in a bit.
January 2, 2022 - Posts a TikTok
response to a comment that said, “I have a cyst on my brain. Actually, a lot of people do. They call them ‘don’t bother me cysts’ because they are so common. Your absolutely fine.” Sarcastically, Jenelle says, “You know what you’re so right; it doesn’t cause any issues until you go paralyzed or can’t hold your bowels anymore or have left arm weakness like I do, or have a nerve study done and show left side weakness in your body.” She says we shouldn’t compare whos worse and that it’s not a competition, and wants to clarify that she has cysts and tumors. She says cysts elsewhere aren’t a big issue, but they are when they’re on your spine. “Just use Google.” She points out that the video is shaking and says it’s because of weakness in her hands. She says the commenter is right that they won’t do anything about it until the symptoms get worse.
Posts another response to a different comment that says, “I know it’s been a long road to this discovery. Can you share with us the journey such as exams they had to conduct to find these tumors?” Jenelle says every time you get an MRI/CT scan done, you should ask for the image disk and bring it with you to every doctor you go to, as long as it has a diagnosis. She shows a picture of her “thoratic” spine and points out
two little tumors and a cyst. She shows the MRI of her sinuses and shows us that cyst. She says she got another MRI that she doesn’t have the image disk for, but it showed she had another hemangioma.
January 5, 2022 - Posts a TikTok with someone else’s audio that says, “how do you know you can’t OD on cannabis? Because I try! I try every fucking day Barbara.” It could be argued she only posted this because her mom’s name is Barbara, but her cannabis addiction is well documented.
January 6, 2022 - Posts a dancing TikTok and a commenter says
, “That’s good for the back.” She responds, “Staying positive and dancing until I can’t anymore.”
January 8, 2022 - Says in a TikTok comment
that she was misdiagnosed with bipolar disorder and just has anxiety.
January 12, 2022 - Posts a TikTok with the caption “When your husband asks if he got you sick,” and the audio says, “Umm… yeah.”
Random thoughts YT January 2022 - talks about her implants and says, “They say to get them redone every 10 years, but I don’t have any problems right now.” She says she asked 2 different doctors, and both told her that she has so many other health issues that they don’t think she has BII and aren’t concerned about it.
January 2022 - Seventh video, with footage starting in October and going through January. It’s been six months since she found out about the cyst. Her back hurts really bad, yet still went on a fair ride (which made her nauseous, despite her “never” having motion sickness before). She has nerve pain in her shoulders, back, and ribs. Headache, neck cracking, ear popping, feels like she can’t breathe. She Googled what she shouldn’t be doing: no trampolines, no scuba diving (“which I’m certified in scuba diving, so that really sucks”), and no roller coaster riding. So. ENT said to see the neurologist again; the neurologist suggests seeing a new ENT. The neurologist assumes the neck cracking isn’t caused by the cyst. Goes back to the neurosurgeon - they’re going to repeat the MRI and look for any changes. The results show it’s getting longer but is the same width. Mentions her heat issues again; she’s getting red patches on her chest and breaking out and itching when she’s in the sun. She says she’s getting neck tightness, extreme pressure headaches, and blood pressure rising when she stands up and sits down. The doctor suggests an MRI of her neck. Now claims arm & fingertip numbness. Refers to her cysts as tumors, benign vertebrae tumors, and hemangiomas. The neurosurgeon suggests pain management, but she wants to try herbal remedies and some fruit that cures cancer. The neurosurgeon says the hemangioma is fine and that her neck is normal. Jenelle suggests she may have thoracic outlet syndrome. She thought her neck was cracking due to the hemangioma, but the doctor tells her that wouldn’t cause the neck cracking. She has an EMG scheduled and will get a blood study done to detect her blood circulation.
February 2, 2022 - Posts a negative review
for another doctor on Facebook. She says she was told by the PA to “go to the ER if you become paralyzed or lose bowel movements due to the cyst in your spine.” She was referred elsewhere for TOS syndrome (thoracic outlet syndrome). She says she’s been crying for months about her problems, and the practice didn’t care to look into it further when her problems are “very apparent” on her MRIs. She doesn’t recommend this office and ends the review with, “Not to mention my cyst in my spine is growing in length 1mm per month.” This same day
, someone comments on a TikTok video asking how her back is doing. She responds by saying, “Lots of pain, and my neck always cracks but waiting on second opinions.”
February 8, 2022 - Posts a TikTok with the caption “Nerve Study Day” with star emojis. She starts her voiceover by saying, “Time for another dottor’s appointment.” She explains the nerve study tests her nerve impulses with shocks and acupuncture pokes. She says, “Don’t worry, I wore a mask, I was sick.” She says she felt like shit after and took a bath and then laid down after because she had a bad headache. She had to help Kaiser with homework, though, because being a mom doesn’t stop. Ate dinner but still didn’t feel well, so she went to sleep.
February 2022 - Eighth video. Got a new opinion from a new neurologist who sent her for another MRI and a nerve study. Claims her symptoms have gotten worse. Says her cervical MRI was at C3, C5, C6, & C7. She has a hemangioma in her neck, degenerative disc disease, and a disc bulge. The thoracic MRI showed T7, T8, & T9 - has a syrinx & hemangiomas there. And the cyst in her sinus. Says her thumb on her left side is losing grip, and her arm doesn’t feel like it’s attached to her body. Her brain pain has been getting worse and worse. Claims the new doctor says it’s weird no one is doing anything. She looked at her CT myelogram scan from 2021 and says spondylosis is her new diagnosis and that the neurologist didn’t tell her about it. Her neck has been cracking even louder - she’s being referred to another neurosurgeon for her spine cyst. She’s going to have her lungs checked for more cysts. After the nerve study, says she has problems at C6 in her spine and is waiting for the neurologist to look at the results. She has had nerve pain in her arm and back since the study, as well as double vision.
February 20, 2022 - Posts a TikTok
about her health and mentions she will get checked for ALS and has been crying a lot. She’s getting all of her tests redone and her nerve study redone. She says she’s having trouble breathing, and since she has cysts “popping up everywhere,” they want to check to see if they’re also on her lungs. She hashtags the video “ALSAwareness” and “PrayersNeeded.” Responding to comments, she says, “Yeah, I asked my doc about MS, and she said nope, I don’t have that based on my brain MRI” and “I wish I did have MS and not ALS
… but she said she looked at my brain MRI and there were no lesions.” Someone comments that the shaky hands and poor thumb grip could be caused by phone use and gaming controllers, but Jenelle says, “No… I’ve had a nerve study to prove weakness. I am having atrophy in my thumb. My thumb is losing muscle.”
February 23, 2022 - Posts an Instagram story
selfie from a doctor’s office captioned “Good news but bad news… blood work is normal”
February 24, 2022 - Posts a TikTok
captioned “freaking out on the inside” and “Life tough at the moment :( #NerveStudy.” She says she had to get another nerve study done because the other person who did it wasn’t her doctor’s office. She shows us her medical shorts and her laughing at herself but says she was “tearing up.” She says the electricity part was good but waited on needles. She shows us the equipment they used. Then she shows us herself crying when she got home because she had such bad nerve pain and then went to bed. A comment asks what she takes for the nerve pain, and she says, “Hot baths.” Another asks if she has fibromyalgia, and she says, “Nope.”
March 6, 2022 - Asked in the comments
on a TikTok video how she’s been feeling and when she’s going to the doctor again. She responds, “Thanks for asking! Have a lot of double vision, neck pain, and headaches everyday.. Going this week for my check up.”
March 10, 2022 - Posts on Instagram that she has a diagnosis
. The next day she sold the story to E! News
and said she was diagnosed with fibromyalgia
. From the article: “For as long as I can remember, I would get extremely bad tension headaches and full body aches - like I had the flu, but was not sick. My entire body gets in so much pain, and sometimes I lay in bed and cry.” She says, “Living life every day is challenging because of having only a little bit of energy to be able to get my work done and then having to go to bed early due to headaches or body aches.” She claims to be changing her diet to manage her symptoms.
March 11, 2022 - Posts an Instagram story
that says, “I’m still so sad. Even tho I have a diagnosis… still doesn’t explain my neck cracking, double vision, and throat pain. I feel so hopeless. Something is def wrong with my neck, and it’s severely tight 24/7.”
March 12, 2022 - Posts a TikTok captioned “Hiii #LungCheckup #HealthUpdate #fibromyalgia.” She says she hasn’t been feeling good and took a break from TikTok for a few days. She shares her diagnosis and says she told her neurologist a few months ago that she couldn’t breathe, so she had a checkup with a lung doctor. They did a FeNO test on her, and her score was abnormally low, like “way too low.” She exclaims it measures the nitric oxide that you exhale on your breath. She’s now been prescribed an inhaler, nitroglycerin for her esophagus spasms, and a full lung checkup. She was going to skip her lung appointment, but good thing she didn’t! A quick Google search tells us that a high FeNO score is when you should be concerned.
March 13, 2022 - Posts a TikTok showing off weed merch someone sent her. In the comments, someone asks, “But do you think smoking is contributing to your lung problems? Hope you get answers soon!” Jenelle responds and says, “.....yeah I know :( but thank you.”
Same day - Posts a TikTok
discussing her health, and in the comments, someone says one of her results can indicate a certain type of asthma. She responds, “or COPD, anemic, cystic fibrosis, etc. lots of issues.”
March 14, 2022 - A commenter
on TikTok says, “My boyfriend rolls his eyes when I tell him my health issues.” Jenelle responds, “David does too.”
Same day - A commenter asks why she doesn’t feel good, and she replies, “The middle of my chest has been hurting for days extremely bad.”
March 16, 2022 - She posts a video
captioned “Peak Flow Meter - Lung Reading” and starts it off by saying, “This is your sign to get your lungs checked.” She said she just woke up and has been told to keep a diary of how her lung function is and is going to see how good it is based on her age and height. She blows into the device for about a second and coughs afterward, gasping for breath. She shows us her level is at 410, and for her height and age, it should be at 475. She says she has the lungs of a 70-year-old. She’s going to continue to do readings 3 times a day and report back to her lung doctor. In the comments, she mentions her average is 400. There are multiple comments telling her the correct way to administer this test and that she’s doing it wrong. She posts a second video
responding to a comment telling her to stand up straight, take a big deep breath and blow out as fast and hard as she can. She does it three times and shows it’s 410 each time. Someone comments, asking if she’s sure it’s not stuck, and asks if she quit smoking. She responds, “I’m going to try breathing exercises.”
March 17, 2022 - Posts a video in response to a comment saying, “I thought you said you had a stiff neck and couldn’t breathe?” She’s lipsyncing to Eminem’s “Hailies Song,” specifically the lyrics “I act like shit don’t phase me, inside it drives me crazy. My insecurities could eat me alive.”
March 20, 2022 - Makes a video responding to a comment saying, “Whatever treatment plan your doctor has you on must really be working. You went from uncontrollable neck pain to this in no time at all.” Jenelle says she’s not going to be the most depressed bitch on this app every single day and is going to show us good and bad days. She says some people are in pain more than others. She says she’s been up since 1 in the morning because of her esophageal spasms, feeling like she has a heart attack. She’s not going to film herself every single time she feels like shit. There’s no treatment plan because they don’t know what’s going on. The only treatment plan she has is for her esophagus. She’s going to dance until she can’t no more.
March 26, 2022 - Makes a video with the caption, “I’ll give y’all more of an update soon. If you see bruises on my arms… you know why #myastheniagravis.” She’s crying and breathing heavily and captions herself saying her chest hurts. The text on the video says, “2 months ago: can’t breathe when waking up.” A clip of her in the bath says, “Tried to relax and rest since this began.” Posts a clip of herself in the ER
that says, “2 days ago: hospitalized for extreme chest pain and difficulty breathing” and shows off her IV and pulls down her gown to show the monitors taped to her chest. The first clip is taken at 3:05 PM, and the second is taken at 3:49 PM. This one says, “Recently had 2 antibodies related to Myasthenia Gravis show up on blood tests.” Another says, “Had 2 EKGs, they stuck me 4 times for blood, stuck me 2 more for IVs, chest x-ray, CT scan,” and shows off all of her taped IV/blood draw locations. She posts another clip in the hallway outside of the x-ray room that says, “My blood clotting test came back high, but they said images looked ok.” We got a full picture of her IV in her arm
that says, “resting for now but following up with neurologist ASAP”
March 27, 2022 - A commenter on TikTok
mentions that weight gain can affect her mobility and says it happened to someone they know. Jenelle responds, “I can’t hardly walk 5ft without my legs burning like I’m doing squats, but I have been trying to take walks around my land lately.”
March 28, 2022 - Posts an Instagram story
of someone else’s video explaining Epstein-Barr and Jenelle captions it “Yes, I do have Epstein Barr nuclear in my system too lol. This is crazy to think about yall… I had mono in middle school and was hospitalized for it (mind blown emoji)”
April 3, 2022 - Posts on her
(shortly thereafter) defunct blog that she’s switching to wine from beer. She says, “With all my health issues happening my stomach and esophagus have not been agreeing with me. Since possibly having Myasthenia Gravis, there’s a huge diet and foods to avoid that can trigger GI symptoms and/or problems.” She claims that “Since switching to wine, my stomach has been a lot calmer, and my burping also has decreased significantly! Super happy I’m making healthier choices for myself.”
April 4, 2022 - Posts a video
making and eating a homemade breakfast sandwich (English muffin, bacon, eggs, mayo).
April 26, 2022 - Shows her coffee order again - trenta iced coffee with vanilla sweet cream cold foam, classic syrup, and sweet cream.
May 2, 2022 - In an Instagram Q&A,
she's asked how she’s doing lately and asked for health updates. She responds, “Health? It’s put on hold until June when I see my new neuromuscular doctor.”
Mid May 2022 - Starts her OnlyFans.
June 3, 2022 - Posts a picture
in her pool exposing her entire rump and captions it “Summer tip: Idk why but switching from beer to wine has shrunk my stomach sooo much!”
June 3, 2022 - Posts a TikTok response to a comment that said, “weren’t you almost paralyzed a month ago? It’s a miracle you’ve recovered.” She says you can’t recover from a cyst in your spine. She says she needs an MRI check up to see how long it’s gotten. She clarified that she said she could go paralyzed any day now. “If I go paralyzed or lose any bowel movements without trying, then I have to immediately go to the hospital and get emergency surgery. So yeah, really, I’m like a ticking time bomb over here, just waiting to give up, I guess you can say. So next week, I’ll be going to see my new neuromuscular doctor. Still have a lot more genetic testing to do and blood work, so we’ll see what’s going on, but they’re thinking an autoimmune disease.” She hashtags it “syringomyelia” and “syringomyeliaawareness.” She also clarifies that she’s leaving health content on the back burner until she has answers.
June 7, 2022 - Posts a video
once again showing her scans of her spine and sinuses. She hashtags this one “syringomyelia,” “sphiehemangioma,” and “sinuscyst.”
End of June 2022 - She and David go to St. Thomas. In the Youtube vlog she posts, she explains she’s wearing a portable fan around her neck to help cool her down since her various illnesses make her sweat/hot. In the airport, she mentions she’s relieved that she’s “so far not sick,” or in other words, not experiencing esophagus spasms. Once they land, she tells us she didn’t get sick on the flight.
June 26, 2022 - Posts a TikTok explaining the wearable fan more. She says she’s been having an overheating issue and that her face has been red, so if she looks burnt, she isn’t. Nevermind the fact that she posted pictures of herself extremely burnt from their vacation.
July 1, 2022 - Posts a video of her on an alpine coaster.
July 4, 2022 - Takes the kids on a trip to the mountains. Posts TikToks over the week of herself hiking and reaching the top of a lookout point. No health mentions.
July 22, 2022 - Posts about her Invisalign. Responds to a comment saying her jaw and teeth hurt and that she has headaches at night.
August 9, 2022 - Posts an Instagram story
selfie showing a heart monitor taped to her chest and captions it “Heart monitor for 48 hours :(. This is following up from a high D Dimer test.”
August 10, 2022 - Posts a health update
to TikTok. She reminds us she went to the ER in March and that while she was there, she had a high D Dimer test. The text on the screen says, “also had abnormal ECG in ER, sinus brachycardia (sic), & sinus arrhythmia.” She explains D Dimer tests are for blood clots or heart disease. They saw she didn’t have a blood clot and that her “lungs were fine” but told her to follow up with her doctor. She says the chest pain has been on and off for the last 3 months so she’s been ignoring it. She finally got ahold of her primary care doctor, who told her the chest pain is still happening, told her about the test results, and got a referral to a cardiologist. She shows us the heart monitor she has to wear for the next 48 hours (her exact words are, “so now, I’m on a chest monitor for the next 48 hours”) and says she has a heart ultrasound tomorrow and a stress test in September.
August 11, 2022 - Posts an Instagram
story that says, “I told the tech ‘I feel like it might be stress from my kids but idk…’ She said ‘no you’re not crazy when it comes to your pain, I see it happening right here.’”
August 24, 2022 - In another Instagram Q&A
she’s asked how her health is going. She says, “Just taking things easy and trying to stay stress free but waiting on test results from my cardiologist still and stress test next month.”
August 31, 2022 - Takes a big bite
from a tall sandwich.
September 27, 2022 - Posts on Instagram/TikTok that they’re flying to Bar Harbor for their “honeymoon.” No mention of esophageal spasms on the plane. On this trip, she completes the Beehive Summit hike
in Acadia National Park. She also showed us when she took a ginormous bite of a lobster roll
and a breakfast sandwich
October 1, 2022 - Rants about her golf cart that broke. Explains that she needs the golf cart so she doesn’t have to “break her back” “running” to the kids. No mention of mobility issues or because of her illnesses. Does mention her life was at risk since the brakes went out.
October 16, 2022 - Buys herself & David new dirtbikes. Bought herself two - one that is too big and powerful for her to ride yet and another that is more manageable for her.
October 19, 2022 - Posts a TikTok about getting mono in middle school. She explains her throat was so swollen and inflamed that she went to the hospital and was admitted. She had IV steroids. Said her body “could not handle” mono and that she was severely sick. She says mono is REALLY severe and that it is the Epstein-Barr virus. She’s “stitching” someone else’s video and references it when she says that E-B can cause so many other diseases when you’re older without you realizing it. There are 3 blood tests that can see if you actively have E-B. Jenelle says it’s crazy to think it can cause all these health issues. She says she can’t breathe and has bad mucus problems lately in the morning. She’s on an inhaler and seeing her lung doctor. They’re going to do a “bronoscopy” and she’s really scared. She tells people she thinks all of her health issues are from E-B. She must’ve forgotten she already explored this avenue in March. And in August of 2021.
October 26, 2022 - Posts a TikTok
that says, “My stomach feeling great… but then… *warning triangle emoji* Esophagus Spams *warning triangle emoji*” and the video of her like errors out? The audio that goes with it says, “Everyone underestimates me but then…. *error noise*” so this is a trend that Jenelle is jumping on to make her esophagus spasms relevant again.
November 2, 2022 - Posts a selfie
to her Instagram stories and captions it “sick with the flu..”
November 8, 2022 - Posts a selfie and captions
it “In bed today, feeling bad AF. Had 4 lung biopsies yesterday and SO sore :(“
Same day posts a TikTok saying, “y’all have you ever had a bronchoscopy where they stick the camera down into your lungs and they take biopsies?” and tells us she had 4 biopsies done yesterday. She’s lying down with her heating blanket and says she feels sore on the inside. She asks again if we’ve ever had it done before, again. She says she had one taken on her voicebox as well, so 4 lung biopsies and that. They did something to her right lung and they cleaned it out with saline water. She says she’ll get results this week. She has mucus built up in her system, and they don’t know why. She captions it, “I can’t stand this #lungbiopsyrecovery”
She got her hair done for 4 hours the next day.
November 12, 2022 - Posts on her Instagram
stories, “Connecting the dots with my health issues. One more blood test, hopefully that’s it. :(“
November 14, 2022 - Posts a TikTok
of her using her inhaler. The caption says “#Combivent Inhaler hopefully some of my mucus production is cut down” She’s making goofy faces while she puts her inhaler together and looks giddy to have an actual physical toy to play with.
November 17, 2022 - David posts
a picture of them and captions it “Yall pray for my beautiful wife, she has been pretty sick lately”
November 17, 2022 - Posts an Instagram
story “Y’all, Predisone (sic) is working wonders right now for my entire body, thank god! #Grateful”
November 27, 2022 - Takes the kids to the mountains for Thanksgiving.
November 28, 2022 - Went tubing in the snow. Snow tubing?
December 2, 2022 - Posts on Facebook
“Sorry if I haven’t posted much lately. I’ve been in so much pain with my health. Not feeling good enough to make any content.”
December 9, 2022 - Says she lost 20 lbs without trying and thinks it’s from health issues. She says she’s had a harder time eating and is eating smaller meals. She then goes on to explain how she’s been losing weight and says, “So if you’re wondering how I’m losing weight: smaller meals, eating healthier, cutting out fast food.”
December 15, 2022 - Posts on Instagram
“If I could find the smartest doctor on this planet, that would be fantastic.”
December 19, 2022 - Her birthday.
She and David fight, she calls him a “narcissistic asshole” and took off her wedding ring. Two days later, posts a TikTok and claims the argument was about luggage. There’s speculation this fight was drug related. In her TikTok defending their argument, her pupils are huge. They’re at the mountains with the kids when all of this is going on. She posts another video saying she has PTSD from past relationships and always assumes David’s cheating because she’s been cheated on in the past. She asks if she’s the only one that experiences this.
December 26, 2022 - Posts a selfie
and captions it “I think I’m sick FML”
December 28, 2022 - Posts another selfie
and captions it “Still sick AF. Yeah.. y’all are right I’m always sick idk why”
January 10, 2023 - Posts a video
eating a chia bowl and captions it “Happy dance after fasting for 12 hours.” She has what looks like a blood draw wrap around her arm. In the comments someone asks if it helps and she says she’s doing it for blood work.
January 12, 2023 - Posts a picture
of a digestive system poster from a doctor’s office and captions it “FML.”
January 14, 2023 - She and David
take a trip to New Orleans. Posts an entire TikTok of what she ate and drank. She takes a giant bite of a crepe. She had 8 alcoholic drinks throughout the day.
January 17, 2023 - Posts on Instagram
, “I have mycoplasma pneumoniae” and asks if anyone else has ever suffered from it.
February 2, 2023 - Lipsyncs to a song about smoking weed.
February 4, 2023 - In comments on another video, someone asks if she lost weight, and she responds, “Eating smaller meals, honestly haven’t been trying. I have a hard time eating.”
February 4, 2023 - Posts a TikTok captioned “Weirdest medicine I’ve ever taken! #MethyleneBlue #mycoplasmapneumonia.” She explains she’s trying to figure out her lung problems and says she found out she has long-term pneumonia and has had it for “pretty long.” Her antibodies are pretty high. Treatment is antibiotics for three months, then retesting her antibodies. She calls methylene blue her other medicine/treatment and says it’s an antioxidant if you use a little and if you use a lot it’s anti-viral, anti-bacterial, anti-fungal, and boosts serotonin and dopamine. She’s also using a redlight watch that is supposed to kill the bacteria in her veins once the dye is in her system. She claims in the comments this was all prescribed by her doctor. That same day
she posts another TikTok where she says she’s been seeing a functional medicine doctor out of Nashville that she found on YouTube. She had one video call visit and said the doctor sent one test to LabCorp and found her diagnosis. She was diagnosed with mycoplasma pneumonia, as mentioned in the previous video, and neutrophilic asthma. He’s who prescribed the methylene blue and wants her to use it with a nebulizer. She says she’s done a lot of research on it and that it has more pros than cons and seems very beneficial. She says she has shortness of breath but is hoping the combination of antibiotics, methylene blue, and redlight therapy will help her feel better in the long run. She’ll let us know how she feels in 3 months. In the comments she claims she wakes up in the morning with panic attacks because of clear mucus.
February 7, 2023 - Answers a question
on Instagram from someone asking how her breathing treatment is going and says, “It’s helping a lot! Since I’m gaining back my ability to fully breathe I’m about to sign up at the gym next.”
February 8, 2023 - Posts another video
responding to someone’s comment that asks who diagnosed her and says that before she says who it is she wants to make sure that all of her problems are taken care of and that it’s the root cause of her issues. She found out with a blood test. She shows us her results and that her count for mycoplasma pneumonia antibodies is very high. You can see a doctor’s name on the page, which I’ve covered to protect their privacy. She says if this treatment doesn’t work, next to try is IV antibiotics.
February 10, 2023 - Posts another video referencing smoking weed/being high all the time.
February 10, 2023 - Posts a picture
of Ensley and says, “She told me she’s sick… idk if she’s lying, off to the doctor we go.”
February 14, 2023 - Answers an Instagram
question where someone asks about her health with “Getting much better!”
February 20, 2023 - Posts a picture in gym clothes outside the gym with the caption, “Here’s a cheers to my new journey to lose my ‘Mommy Pouch’ and love handles. Started working out today and it feels great!”
February 23, 2023 - Takes a giant
bite of a birria taco.
February 24, 2023 - Posts a TikTok that she captions “#GymDay.” Based on what she’s wearing & her hair, this looks to be from 2/22. She says it’s an arm and chest day. We see the chocolate peanut butter protein shake she gets after and the Epsom salt bath she takes to soothe her muscles from yesterday’s workout.
March 1, 2023 - Posts a TikTok response to a comment that says, “Hope all is well. Miss ya video’s.” She says she’s been in a shitty mood. She thought her health was getting better, it was getting a little better, and she interrupts herself with a big cough. She says she’s finally seeing her new lung doctor and is having a sleep study done, is on a new inhaler, is having old CT scan results looked over, and her mind is “boggled” because she has to redo all of her esophagus tests again because they’re so old. She has to redo the catheter test with it down her nose/throat.
March 13, 2023 - Posts a TikTok
with text on it that says, “Won’t be available in 1 week because I have esophagus testing but still drinking this alcohol like I’m A-OK” and captioned “#truth but kidding at the same time.” She says in the comments that it’s a trend. I don’t know or understand the trend, but she said it herself, truth.
March 22, 2023 - She and David take a trip to Key West without the kids.
March 23, 2023 - In response to criticism of her stomach, she says she had three kids, had her appendix removed, and had a hernia repaired. Her last child was born in 2017, her appendix was removed in 2013, and the hernia was repaired in 2018. Her significant weight gain started around 2020 and was unrelated to any of these events.
March 25, 2023 - Posts on Facebook
that she had an esophageal spasm episode from deep sea fishing and wants to know if anyone else has experienced this so she can share experiences.
March 26, 2023 - Shows pictures
on a TikTok video of how sunburnt she and David both got. She says she used “so much” sunscreen.
March 27, 2023 - Posts a TikTok telling us her seasick story from when they went deep sea fishing. She says they chartered their own boat and were talking about how neither of them had ever experienced seasickness before. She says they have their own 18 ft boat, and she’s never gotten sick on it. She says the waves were super choppy, and they were rocking so hard that her esophagus started acting up. This was around 12:30, and she just laid on the boat until they docked at 6:30. She tells us to be careful if we go deep-sea fishing because we can get seasick. She thinks that’s what happened to her, anyway. In the comments, someone tells her to take Dramamine, and she says it makes her sleepy. Which like, yeah…
April 6, 2023 - Posts on IG
“Been MIA for a few days because my breathing isn’t so great and random chest pain as usual. Literally been resting for 3 days now.”
April 9, 2023 - Posts on Facebook
“Positive ANA. Maybe there will be answers soon.” Someone responds in the comments that it could mean Lupus or Sjogren’s syndrome and said a rheumatologist can do further testing. Jenelle responds, “yes, being referred. My endo found out for me.”
April 17, 2023 - Posts a TikTok
going to get Vitamin B12 injections. She says she has to give them to herself once a week for 4 weeks, then once a month after. Her vitamin D is also low. She went to the store to get syringes and stopped for her usual coffee. She shows us her order, which is now a Trenta iced coffee with no classic syrup, hazelnut syrup, ½ sweet cream, and vanilla sweet cream foam topping. Someone in the comments points out that a doctor on TikTok said those injections are just to make money, and she responded, “well, my vitamin B12 and D is low, and my ANA is positive, which means now I go to see a rheumatologist.”
April 18, 2023 - Posts a TikTok this day and the next day with her catheter in for her acid reflux test. She posted a picture on Instagram
where we can see she’s driving 80 mph and captions it, “Going alone to get a procedure done for my esophagus today and I’m really scared. Have no support so any prayers are appreciated.” Through her postings about this procedure, we learn she stayed in a hotel by herself overnight. In the video from the 19th
, in the comments, she says she has a spot on her lung that hurts. The doctor says it’s caused by vaping, but she claims she never vapes. She’s definitely posted videos and pictures of herself with weed vape pens and has been a known weed smoker for over 10 years, as well as smoking cigarettes throughout the years and smoking heroin out of wooden pipes, which she had addressed by a doctor in 2012. Curious if she mentioned that this time. She’s up and down the comments claiming she doesn’t vape weed because that’s illegal where she lives.
April 24, 2023 - She and David travel to Virginia to buy a boat and start their multi-day journey sailing through the ocean back home. She claims she purchased this $57,000 boat with money made on OnlyFans.
April 30, 2023 - Posts on Instagram
that they made it back home. Someone commented asking how long until she has esophageal spasms again. Jenelle responded, “I’ve had them the whole time I was gone…”
May 2, 2023 - Not health related but still fun; she posts that the turbos need to be replaced.
May 4, 2023 - Posts on Instagram
“Good news: I don’t have acid reflux. Bad news: they still don’t know why I have esophagus spasms”
May 7, 2023 - Posts on Instagram
“#HealthUpdate Found out I have thymic hyperplasia and lesions on my liver, and no I don’t have MG like they thought. Don’t know why this is happening. Discussing these results next week with my doc and the next steps.”
May 16, 2023 - On an Instagram Q&A, answers two questions about her health. To the first generally asking how
she is, she says, “Seeing my rheumatologist this week for a positive ANA. Maybe I’ll get an answer.” To the second that says,
“Any word on your liver results?” she says, “My doctors do not care at all. Told me I’ll get another CT scan in a year to check on that and my thymus.”
May 19, 2023 - Posts on Instagram
“#HealthUpdate: My rheumatologist is retesting me for things like arthritis, lupus, etc., for having a positive ANA. Might be referred to another lung specialist soon. We will see what my results show in 2 weeks.”
May 28, 2023 - Answers two more questions in an Instagram Q&A about her health. One asking how she’s doing
, she says, “I’m doing good, just not feeling too great lately.” The other asked about
her health, she says, “I had DNA testing done and honestly shocked but will share the news soon.”
May 31, 2023 - Posts a TikTok of them taking their smaller boat out onto the Intracoastal Waterway. In Part 1, posted on the 30th, she says she was starting to feel seasick. We learn their “new” boat is still not working.
I’ve taken my GBS test last week and I am still waiting on a response saying if I passed or not. The clinic I go to always does this…then they sometimes require me to schedule an appointment for my results chile I’ll get my STD results quicker than this. Like they don’t call and let me know about anything is this what they’re supposed to do!? I have to call them every time I get a test done. If I didn’t reach out about my test results of one blood test then I wouldn’t had known that my thyroids were overactive. I don’t know how long they’ve been like that either. They didn’t call me about if I passed my glucose test or not I had to call them. They keep charging me for every damn thing cause they sending everything to Labcorp expensive asses. If I have to keep calling to get my test results then I’m gonna get paranoid if they’re just saying anything to me because GBS isn’t nothing they can be laid back about with not telling me, it’s not like they’re too busy either the clinic stay empty as hell every time I go. Other moms I see are contacted and notified about their results and up to date about everything.
I work in a health clinic and we do our own blood draws as opposed to sending patients to a labcorp or something to get blood work done. Each blood draw is required to process for nearly an hour before it can be stored for the next day's shipment. This means that if we draw blood on our last few patients of the day, we are required to stay after our posted end of shift in order to wait for the blood tubes to process. Usually the closer is already the last person in the building which means there really isn't any option for them to leave on time as scheduled and no one is available to take over.
Initially, we implemented a rule that we stopped blood draws 1 hour before closing to account for this timing issue. The manager's manager just admonished us for creating a barrier to patient care though and we are now required to draw labs regardless of how late that would make us stay in the clinic. The argument was that a lot of our patients are underserved and don't get the PTO to come in at a later date for a blood draw only appointment. However, I don't agree that this should come at the cost of forcing staff to stay for overtime, especially given how many of our workers are single parents or live far away.
I'm just not sure how to proceed though because she super outranks me and it seems to come down to a difference of opinion?
Hi everyone, hope you all can follow along, I’ll try to make my long story as clear as possible. I’ll be going to my current OBGYN to get their input because I am pregnant and need to figure this out for the safety of my baby. But wanted to see what responses I could get from this community. Love you forever if you get to the end lol.
Last June 2022, I received oral from a guy and a few days later noticed down there felt funny. I can’t really say if it was a tingly feeling but it was just different. Irritated. I ended up using monistat cream on my inner labia because I thought I was getting a yeast infection, and that’s when things got worse I would say. I went to urgent care to get tested and had a headache of time doing so. Visually, the doc told me it was Herpes and that I had Bacterial Vaginosis. We did blood work and some swabbing. Any results I received from this urgent care were delivered over the phone & uploaded to their portal. When I downloaded the results from their portal, I could see the following:
-my igg results for HSV1 + 2 were negative (at the time I didn’t know it took a while for those antibodies to show up for Igg) -“HSV culture and typing” was negative - swab for bacterial vaginosis and yeast were negative -all other STDs were negative. But I did get a positive for ureaplasma via urine sample… to which I never heard of that at the time. I treated it with doxycycline.
Anyway as mentioned, this is what I saw on the portal. I eventually get a call from a nurse saying I was negative for everything except ureaplasma and my hsv 1 swab. Now the last part confused me and i had to question them because the results I was looking at showed “hsv culture and typing” was negative. They literally can’t clear this negative / positive situation up for me and continue to say I was positive for hsv 1. Understandably, if I’m looking at a negative result and you’re saying it’s positive, I don’t understand where you’re getting the positive from. Months later, I find out what the problem was on my own. They did two kinds of swabs on me and never uploaded the one that said “positive” to their own portal. The only way I see a positive result with my own eyes is because one day I logged into my Labcorp account and saw test results from the urgent care visit history uploaded.
The info on Labcorp website shows as:
-HSV 1 NAA: Positive. Abnormal. In addition to all of the previous results I provided above.
With what I saw on Labcorp, I said to myself “okay, I guess this is the positive they were talking about and I do have it”. And I have been living life with this thought since then. I have not taken Valtrex since I was first prescribed it though.
Backtracking but, before logging into my Labcorp account months later after initial testing, the urgent care doc prescribed me valtrex so I take it as directed. I had concerns because I felt like the medication wasn’t “working” as the doc explained it would. I was still uncomfortable for days. So of course in my mind at the time with the medication seemingly not making anything better, the negative HSV culture result I saw, and these people telling me I’m positive over the phone with no evidence for me to see, I’m like “do I even have it? Am I treating the right thing?”. So I end up finally getting an appointment with the OBGYN office I was seeing at the time, I explained the situation and they proceeded to give me an IGM test for HSV1 + 2. I know this test is not accurate but whatever, they gave it to me. So they come back and tell me HSV 1 IGM was positive. I asked for the ratio and they told me it was 1:40 (if this matters to the story). I had nothing to swab at this point which is why they only gave me blood tests I guess. But my OBGYN at the time concludes I have HSV 1 since my IGM was positive, “indicating a new infection”.
So now it’s May 2023, 11 months since that possible exposure. And since I am pregnant, I want to let my OBGYN know if I need to be prescribed valtrex when I become 36 weeks pregnant, to lessen the chances of an outbreak at the time of delivery (I haven’t had any issues to my knowledge since the initial incident, but still). In my prenatal care at my current OBGYN, they have never blood tested me for HSV (so many blood tests they give you throughout pregnancy and yet they still don’t include this lol). So I went and got an HSV 1 igg test done at Labcorp to figure this out myself. I just got the results today and it’s negative, <0.91. So with all this info, can anyone infer why this hasn’t been a clear cut case for me? Any input you can give me? What’s wrong here? Do I have G-HSV1?
Last year I originally was going to test my igg level 6 weeks after my initial negative igg results/exposure but I didn’t get around to it. However, I would figure my blood test would be positive at this time like the internet and doctors indicate? It’s pretty much been a year. Thanks in advance.
As many of you many have seen I posted a few days ago being positive through some LabCorp testing. I immediately booked an appointment with my doctor and scheduled a follow up test with a HIV RNA test
The HIV Antibody/Antigen test came back positive for HIV-1 the second time, however the HIV RNA came back with no virus found. Does that make me HIV+ but undetectable? Or would that mean I'm HIV-?
Hi, I’m here to complain. I’m a 25 yr old AA female with one child. I’m currently in nursing school and living with my boyfriend (my child’s dad). I work PRN at a doctors office. And I’ve been recently diagnosed with Lupus- I think… if you want to read my story and give advice/recommendations please feel free, if not, just keep scrolling. I’m quite literally just venting.
Since about 8th grade I’ve been exhausted, having symptoms that only got pushed aside by adults saying I was just “lazy” or amidst of my symptoms saying that I was fine, and I just needed some vitamins. I felt like I was made out to be a person that complained a lot even considered if I was lazy for a long time. It made me insecure. I knew something wrong but nobody listened and I didn’t have the obvious symptoms for anyone to truly care. I haven’t had the energy level I felt I needed in a long time. It’s caused me a Great Depression. Fast forward to graduating High School in the top ten and going to one of the biggest universities in my state. After attending university for about a year, I experienced some pretty rough trauma. And almost immediately after, here comes this feeling again. I was taking 12 credit hours, working third shift and I felt like I was barely hanging on. I passed the blame on not having chosen the right major and I fell below the totem pole, I was in and out of doctors offices and physical therapy and I picked up a habit. I started smoking weed. I was in an innumerable amount of pain is all areas, mentally, physically and spiritually.
During this time, I indulged myself in toxic relationships, was in and out of therapy and feeling like the world had short me and I didn’t know why and I didn’t know what to do to make it better and it seemed like no one else knew either. I was the most depressed I’ve ever been. My hair had fallen out, I was losing a lot of weight and I was in PAIN. but no one heard me. It felt like no one cared.
Covid swept the nation and I was forced to go back home. I dropped out of university and started working in a small doctors office. I was still in pain but doing a lot better than I was- sometimes going home is a good thing. One of the NPs in the office talked me into going to nursing school, while also being able to look at me and say “That’s a sick young lady right there. Let me run some blood work.” I agreed and allowed him to do so. I was the diagnosed with Lyme’s Disease. Doxycycline 2x a day for 2 weeks and no more Lyme’s. Too bad I couldn’t keep the medicine down and repeatedly threw it back up. I still had it. So now, IV Doxycycline 2x a day for 3 weeks. The hardest 3 weeks of my life. After treatment, my face would breakout in hives coming from the top of my head all the way down to my neck. For this, I was told to keep Benadryl on me. I found out I was pregnant during the last week of treatment, I wasn’t tested again after the treatment was completed. 9 months later, I had a healthy baby girl, I’m also in nursing school at this time. I’m still so tired bad in pain. It must be the fact that I just had a baby, my body must need time to recuperate.
Fast forward one year late and I’m still tired and I’m pain and now, I feel like I can’t think straight. I’m back again. And I’m So tired. This can’t be normal. This can’t be a healthy picture of a 25 yr old female. Something has to be wrong.
So I put what I learned in nursing school So far to use. I reviewed ever my lab from my Labcorp account and I compared every one of them. I quickly made a doctors spoon and wrote down every sign/symptom I had and all the blood work I would have liked to have.
When I got to my doctors appointment, I handed the paper to the nurse and explained my story to her. She gave it to doctor who came in the room and looked me in my face and said “I’ll run this blood work but I’ll only test your ANA, whether I do the rest is contingent on a positive ANA. But I’m going to be honest with you, I think you’re fine, I think it could just be depression because it shows up the same in the body.” And there’s that feeling again. I wanted to cry. I wanted to roll in a ball lie on the floor and cry. Once again, I felt I wasn’t being heard and my feelings were pushed aside for what someone else deemed a fact. I walked out of the office that day with my head low and my eyes filled with tears. “Am I imagining this? Am I just depressed?”
About 2 days later, my bloodwork came back, my ANA was positive, my Anti Chromatin was elevated, my Anti RNP was elevated and Sjrogens SSB was elevated.
How bittersweet? I was right, but now I want to know right about what exactly? What does this mean. I gave my doctor 4 full days to call with my results before I contacted her. She messaged me to tell me my lupus markers were significantly high and I was being referred to a rheumatologist. That’s it.
While at an orthopedic appointment about a week later, He kept telling me about how he’d talked to my doctors about me having lupus and kept asking questions about how they found it and what’s next. I was a little dumbfounded bc I hadn’t been properly diagnosed yet but he kept implying that it was in fact lupus. After getting a steroid shot in a bursitis on my hip, I read his visit notes which stated that I was diagnosed with lupus. My doctor still hasn’t called other than the message from my chart that I had to reach out to her for. Now this doctor I’ve never seen before is telling me that he discussed the very fact that I have lupus with my doctor. And I just find it strange because I haven’t. I’m torn in two when it comes to how I feel about it. Yes, I’m going to a rheumatologist but I would’ve also liked to have had a diagnosis from my PCP or just a little more regard for your patient… idk. I’m done.
I was officially diagnosed a few weeks ago after I've been suffering with hyper symptoms since January. Apparently my WBC was almost in sepsis range. I don't have my lab results because they haven't been posted to my Labcorp account I'm not sure why but anyway I've been on Ciprofloxacin, I only have like 3 more doses left. I do feel a little better like I'm able to stand up for a few mins and mostly my HR has been sitting between 60-85bpm, however I'm still feeling super weird and have to sit down when I do stand up. My thyroid is still enlarged and feels bigger. I'm having alot of problems swallowing and my asthma is now flared up. My next appointment isn't until next Tuesday. Has anyone experienced this or something similar? Is it possible that I do still have hyperthyroidism? Thank you in advance- I'm just super depressed still dealing with this and appreciate any personal insight.
Just looking to see if anyone has gone through this or knows anything about it.
My mom was recently diagnosed with Celiac and so I took a blood test as well since it’s hereditary. It takes forever to get a Dr appointment where I live and I got tired of waiting so I just went to a labcorp and paid to get the testing done myself. My results are:
t-Transglutaminase (tTG) IgA: 10
Deamidated Gliadin Abs, IgA 01: 36
These numbers are higher than my mothers. So im assuming it’s pretty likely I have celiac.
Here’s my question, It’s likely that it will take a while before I can get in for a scope. Should I go ahead and cut gluten out right away? I know I’ll need to eat it before the scope in order for it to be accurate, but now im hyper-aware of how my body is reacting and that I’m doing damage and I just want to start making progress right away.
What should I do?
Context: I got diagnosed in August 2021 and have been taking Adderall IR since. Right now I am on 30mg IR (half the pill twice a day). Some days I forget to take the second half and on weekends I normally take a break. I wasn't able to get a refill from the end of December 2022 until the start of March of 2023 due to the national shortage. During that time I used leftover does from weekends and days where I only took half to hold me over.
I requested a refill at the end of March and was told that my prescriber asked me to take a urine drug screen before my next refill. I was originally told I could complete this at any time before my next refill so I had scheduled it for the second week of April since I was moving and then going out of town the first 1.5 weeks of April. Received an email last Wednesday (two days before my drug test appointment) that I had 48 hours to send the results to my provider or I'd be dropped by her.
I scrambled to find a new appointment and was able to get to a LabCorp to get tested. I made sure to remember to take the full dose of my 30 mg Adderall IR the weekdays before and the morning of my drug test.
I just got the results back and I tested negative for Amphetamines despite very much being on them. I'm worried my doctor is going to drop me and think that I am not taking or am selling my medication. I don't know what to do or say - I know a lot of other people have experienced this lately. How did those conversations go with your doctors?
I recently decided it was time to take charge of my health and get some of the things that have been bugging me taken care of now that I have insurance with a reasonable deductible. My insurance plan had a teledoc option for my GP so I went with that because I live in a rural area so it’s a hassle to go anywhere. She ordered routine labs, which I needed-it’s been 7 years since I had any. She included an HIV test as well as HEP-C. I wasn’t worried in the least bit about that. I was more concerned that I’d have terrible cholesterol or something like that. Everything checked out just fine. Except, my hiv results aren’t there. I was sent 17 different notifications, one for each test. I went through them all and it’s not there. But, there is one that is blank. It only has the teledoc header and footer, but no text in between. It had to be the HIV test because all the rest are there. I’m HORRIFIED now. I can’t get an appointment with her until Tuesday and the Labcorp app says they won’t release my results until the 18th.
I’m a 47 year old woman. I was married for 20+ years; divorced 4 years ago. I dated ONE man, for about a month last year but that’s been it. That was enough lol Him and my ex husband were the only men I slept with in over 25 years. I never have worried about this because I assumed I had zero (or near zero) risk until my divorce.
Do you think they would release all my labs except for the one if it was positive? I’m praying it was an oversight or mistake or something? Aren’t they by law supposed to release lab results to the patient as soon as they get them, regardless of the result? At least that’s what I read on google lol. Now I just wish I’d picked a face to face dr that I could call and ask. Can any doctor get access to my results? If so maybe my old dr could but I don’t want to bug him about it unless it’s possible.
I’m just curious what y’all think. I never thought at my age this would even be an issue. I’d truly appreciate any thoughts or ideas about what’s going on. It’s going to be a long wait until Tuesday:(
I paid for a drug test with labcorps and had my appointment with the primary care doctor yesterday ( Thursday) at 10:30. When should I expect my results back? Does anybody know if results post on weekends?